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WHEREAS, The Children's Sickle Cell Foundation, Incorporated was established in 2002, by a group of parents, a physician and community leaders, with a mission to provide quality programs for children with sickle cell disease, and to help them face the educational, social and economic challenges caused by sickle cell disease; and,
WHEREAS, sickle cell disease affects approximately seventy to one hundred thousand in the United States and approximately eight hundred persons in the Greater Pittsburgh area, with more than a third of these who are children, affecting the red blood cells and causing excruciating pain in unpredictable episodes commonly known as 'pain crises' that are often managed with strong medicines; and,
WHEREAS, for a decade, the Board of Directors and Staff of CSCF have been successfully providing quality programs for children and families, enriching their lives, and empowering them so that they, too can say that they are “Living Well with Sickle Cell”; and,
WHEREAS, CSCF's programs include a year-round Educational Support, a monthly Family Support meeting, weekly wellness programs in collaboration with the Children's Institute, including the popular Learn2Swim and KarateFit Programs, and annual events such as the Back2School Bash and Season2Give Programs, which provide economic support to families; and,
WHEREAS, the strength of CSCF has been in their strong collaborative partnerships, working with more than 20 partners over the years, including the newest partnership in 2012 with the Vascular Medicine Institute at the UPMC Pilot Project Program in sickle cell disease research, which is intended to attract established and new investigators to sickle cell disease research by seeding innovative and translational research projects that have the potential to open new avenues for critical research in curative therapies for sickle cell disease; and,
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NOW, THEREFORE, BE IT RESOLVED that the Council of the City of Pittsburgh do...
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